Grant Writer
- Location
- New York, New York, United States
- Work mode
- Remote
- Employment type
- Part-time
About the job
We are looking for an experienced Grant Writer (Freelance, Remote) to support a nonprofit organization dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease. The organization raises funds to advance scientific research and treatments, support affected individuals and families, and strengthen the global Barth syndrome community. The ideal candidate has a strong track record of researching funding opportunities and developing compelling, successful grant proposals for nonprofit, healthcare, rare disease, medical research, or patient advocacy organizations. Through strategic prospect research and high-quality proposal development, this role will help strengthen the organization's institutional funding pipeline and clearly communicate its impact, priorities, and funding needs to prospective funders.
Responsibilities
• Research and identify relevant foundation, corporate, government, and institutional grant opportunities.
- Research and identify relevant foundation, corporate, government, and institutional grant opportunities.
- Develop and submit compelling grant proposals, letters of inquiry, applications, and supporting materials.
- Collaborate with internal stakeholders to gather research, program, impact, financial, and organisational information needed for applications.
- Maintain grant calendars and track deadlines, submissions, reporting requirements, and funding outcomes.
- Support grant reporting, funder communications, and proposal revisions as needed.
- Strong track record of developing successful grant proposals and securing institutional funding.
- Significant grant writing and fundraising experience within nonprofit, healthcare, medical research, rare disease, patient advocacy, or related sectors.
- Strong understanding of grant prospecting, funder research, proposal strategy, and institutional fundraising.
- Strong grant research, proposal writing, storytelling, editing, and communication skills.
- Highly organised and able to manage multiple applications and deadlines independently.
From Digital's careers page (Workable), checked 29 Oct 2026.
How to apply
- Select Apply on apply.workable.com. It opens Digital's own application form in a new tab, run on Workable.
- Fill in the form and upload your résumé there. Jobiwork never sees your application.
- Digital will reply to you directly. No real employer asks you for money to apply.
Posted 1 Oct 2026 · checked 29 Oct 2026 · Report this job